Hope for Every Boy, Strength for Every Family
We walk alongside boys living with Duchenne Muscular Dystrophy and their families, offering support, awareness, and dignity in every step of the journey.
About Us
The Duchenne Muscular Dystrophy Foundation Kenya (DMDFK) is a community-based organization dedicated to supporting boys living with Duchenne Muscular Dystrophy and their families across Kenya. We provide medical guidance, emotional support, assistive devices, and advocacy to ensure every child with DMD can live with dignity and hope.
Vision
A Kenya where every child living with Duchenne Muscular Dystrophy receives the care, support, and opportunities they deserve.
Mission
To improve the quality of life for children and families affected by Duchenne Muscular Dystrophy through support, awareness, and advocacy.
Core Values
- Compassion
- Inclusion
- Integrity
- Hope
- Collaboration
What is Duchenne Muscular Dystrophy?
Duchenne Muscular Dystrophy (DMD) is a rare genetic condition that causes progressive muscle weakness, mostly in boys. It's caused by a mutation in the gene that produces dystrophin — a vital protein for muscle strength.
Early Signs (ages 2–6): Frequent falls, delayed walking, difficulty climbing stairs, enlarged calves, or walking on tiptoes.
Most boys require wheelchairs by their early teens and may face health complications affecting breathing and the heart. There's no cure yet, but early care, physiotherapy, and assistive devices greatly improve quality of life.
DMDFK exists to ensure no boy or family faces this journey alone.
Our Work
Awareness & Education
We conduct campaigns in schools, communities, and hospitals to reduce stigma and promote early diagnosis.
Family Support
We offer counseling, grief support, and mentorship to help families cope emotionally and practically.
Assistive Devices
We provide wheelchairs and mobility aids to help boys live with independence and dignity.
Advocacy
We engage government and partners to push for inclusion and supportive policies.
Community Building
We connect families through visits, workshops, and mentorship programs to share hope and experiences.
Physiotherapy
Specialized physiotherapy programs to maintain mobility and quality of life.
Latest News
Understanding Duchenne Muscular Dystrophy: What Every Parent Should Know
If your child has recently been diagnosed with Duchenne Muscular Dystrophy (DMD), you likely have many questions. This g...
Why Early Diagnosis Matters for Duchenne MD in Kenya
Every day counts when it comes to Duchenne Muscular Dystrophy. Early diagnosis — ideally before symptoms become severe —...
How You Can Help: Volunteer & Support Opportunities
At Duchenne Foundation Kenya, we believe that everyone has something valuable to contribute. Whether you have an hour to...
Upcoming Events
Parent Support Group Meeting — August
Foundation Offices, Westlands, Nairobi
Monthly support group meeting for parents and caregivers of children with DMD. This month's topic: Navigating the Kenyan...
Annual Charity Walk for Duchenne
Uhuru Park, Nairobi
Join us for our Annual Charity Walk to raise awareness and funds for Duchenne Muscular Dystrophy. The walk begins at Uhu...
Duchenne Awareness Day 2026
Kenyatta International Convention Centre, Nairobi
A full-day event dedicated to raising awareness about Duchenne Muscular Dystrophy in Kenya. Featuring guest speakers inc...
Get Involved
You can make a difference in the lives of boys living with Duchenne Muscular Dystrophy — whether by donating, partnering, or volunteering your time.
Meet Our Team
The dedicated people working behind the scenes to support families affected by Duchenne Muscular Dystrophy.
Schollar
Founder & Executive Director
Dr. Samuel Otieno
Medical Advisor
Faith Wambui
Programs Coordinator
Brian Mwangi
Advocacy & Partnerships Lead
Stories & Impact
Receiving a wheelchair changed our son's life. He can now go to school and be with his friends.
Through counseling, I found the strength to care for my child with hope.
The support group connected us with other families who truly understand our journey.